Patricia Shuter

Abstract of Patricia's research:

Predictors of complicated grief and health outcomes in family caregivers of people with dementia.

Investigators: Patricia Shuter, Professor Helen Edwards, Professor Elizabeth Beattie & Dr Sandy Sacre

The primary aim of this research project is to determine whether the occurrence of complicated grief is significantly related to health outcomes of family caregivers of people with severe dementia. A secondary aim is to determine whether a palliative approach to care as well as other protective factors, have the capacity to improve health for these caregivers following the death of their relative. An initial qualitative scoping study has been completed, the results of which will inform the second stage, a prospective cohort follow up study of caregiver health outcomes. Preliminary findings indicate that the issues that have the most impact on this group are not those directly related to the day to day tasks associated with care giving but rather individual characteristics and coping strategies, loss and grief experiences, and encounters with formal care providers. Other significant issues include recognition of the positive aspects of the care giving experience and the relationship of the caregiver and the person with dementia. Many of these identified issues are consistent with the literature. Focus on these issues presents the opportunity for research that identifies appropriate and effective early interventions to avoid complicated grief in this group.